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Vocapedia > Health > Disability, People with disabilities > Visual disability, Blindness, The Blind

 

 

 

 

I Have a Visual Disability, And I Want You To Look Me In the Eye | NYT Opinion        Video        14 July 2021

 

Descriptive audio is available for this video.

Go to settings - audio track and select 'English descriptive.'

 

In the Opinion video above,

James Robinson, a filmmaker from Maine,

shows what it feels like to live with several disabling eye conditions

that have defied an array of treatments

and caused him countless humiliations.

 

Using playful graphics and enlisting his family as subjects

in a series of optical tests,

he invites others to view the world through his eyes.

 

But his video is also an essay on seeing,

 

in the deeper sense of the word

— seeing and being seen,

recognition and understanding, sensitivity and compassion,

the stuff of meaningful human connection.

 

In a society that does a lousy job of accommodating the disabled,

Mr. Robinson appeals for more acceptance of people

who are commonly perceived as different or not normal.

 

“I don’t have a problem with the way that I see,” he says.

 

“My only problem is with the way that I’m seen.”

 

YouTube

https://www.youtube.com/watch?v=TjxC-evzxdk

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

NOTES ON BLINDNESS    NYT        16 January 2014

 

 

 

 

NOTES ON BLINDNESS        Video        Presented by The New York Times Op-Docs        16 January 2014

 

An official selection of the 2014 Sundance Film Festival.

 

In 1983,

after years of deteriorating vision,

the writer and theologian John Hull

lost the last traces of light sensation.

 

For the next three years,

he kept a diary on audiocassette

of his interior world of blindness.

This film is a dramatization

that uses his original recordings.
 

 

Directed by Peter Middleton & James Spinney

 

YouTube

https://www.youtube.com/watch?v=0LoOWpWHMQw 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Flo: Portrait of a Street Photographer        NYT        23 October 2013

 

 

 

 

Flo: Portrait of a Street Photographer        Video        NYT        23 October 2013

 

This short documentary

profiles the photographer Flo Fox who,

in spite of near-blindness and multiple sclerosis,

continues her work in the streets of New York.

 

YouTube

https://www.youtube.com/watch?v=I11wl2OeaS8 

 

Related

NYT    October 21st, 2013

http://www.nytimes.com/video/opinion/100000002510964/flo.html

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Illustration: Brian Rea

 

Together Always, in Darkness and in Light

NYT

MARCH 19, 2015

https://www.nytimes.com/2015/03/22/
style/together-always-in-darkness-and-in-light.html

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

lose her / his sight        USA

 

http://www.npr.org/sections/thesalt/2015/08/24/
434088387/chef-wants-diners-to-remember-her-cooking-not-her-blindness

 

 

 

 

 

 

 

 retinitis pigmentosa

 

a genetic condition

that causes the loss of photoreceptor cells

 

https://www.nytimes.com/2020/12/22/
sports/blind-runner-marathon-technology.html

 

 

 

 

 

 

 

blind        UK

 

https://www.youtube.com/
watch?v=_XSDpEY2VbU - G - 1 June 2018

 

 

 

 

 

 

 

blind        USA

 

https://www.npr.org/2021/10/23/
1048699230/scientists-used-a-tiny-brain-implant-to-help-a-blind-teacher-see-letters-again

 

https://www.npr.org/2021/08/29/
1030638626/david-brown-blind-runner-sighted-guide-tokyo-paralympics

 

https://www.npr.org/sections/health-shots/2021/05/10/
993656603/blind-patients-hope-landmark-gene-editing-experiment-will-restore-their-vision

 

https://www.theguardian.com/lifeandstyle/gallery/2021/apr/15/
legos-bricks-for-the-blind-in-pictures

 

 

 

 

https://www.nytimes.com/2020/12/22/
sports/blind-runner-marathon-technology.html

 

https://www.npr.org/2020/06/19/
879217562/he-went-blind-before-high-school-his-teacher-aide-thanks-him-for-saving-her

 

 

 

 

https://www.nytimes.com/2019/01/11/
lens/a-blind-78-year-old-magician-finds-a-new-stage-new-yorks-subways.html

 

 

 

 

https://www.nytimes.com/2018/01/23/
well/live/doctors-patients-empathy-talk-relationship-communication.html

 

 

 

 

http://www.npr.org/sections/goatsandsoda/2017/10/16/
558067629/how-white-cane-day-makes-a-difference

 

https://www.theguardian.com/sport/video/2017/oct/03/
fighting-with-out-sight-the-story-of-ronald-dlamini-video

 

http://www.npr.org/sections/health-shots/2017/03/14/
520008274/a-blind-theatergoers-hamilton-lawsuit-aims-spotlight-on-broadway-accessibility

 

http://www.npr.org/sections/health-shots/2017/01/05/
505419694/blind-art-lovers-make-the-most-of-museum-visits-with-insight-tours

 

 

 

 

http://www.npr.org/sections/health-shots/2016/09/19/
494593600/when-blind-people-do-algebra-the-brain-s-visual-areas-light-up

 

http://www.npr.org/2016/08/19/
490394572/deaf-and-blind-her-father-still-knows-how-to-speak-his-love

 

http://lens.blogs.nytimes.com/2016/06/01/
a-photographers-homage-to-his-blind-parents/

 

 

 

 

http://www.npr.org/2015/10/26/
451997125/remembering-a-lifelong-radio-man-and-his-big-broadcast

 

http://www.npr.org/2015/10/14/
448294462/a-blind-football-player-joins-his-trojan-heroes-on-the-field

 

http://www.npr.org/sections/thesalt/2015/08/24/
434088387/chef-wants-diners-to-remember-her-cooking-not-her-blindness

 

http://www.nytimes.com/2015/03/22/
style/together-always-in-darkness-and-in-light.html

 

http://www.npr.org/blogs/health/2015/01/23/
379138970/a-blind-woman-gains-new-freedom-click-by-click-by-click

 

 

 

 

http://www.npr.org/blogs/health/2014/02/05/
272092118/seeing-less-helps-the-brain-hear-more

 

 

 

 

http://www.nytimes.com/2012/05/30/
arts/music/doc-watson-folk-musician-dies-at-89.html

 

 

 

 

http://www.nytimes.com/2009/09/27/
health/research/27eye.html

 

 

 

 

https://www.nytimes.com/1987/12/02/
movies/film-blind-wiseman-documentary.html

 

 

 

 

 

 

 

go blind        USA

 

https://www.npr.org/2020/06/19/
879217562/he-went-blind-before-high-school-his-teacher-aide-thanks-him-for-saving-her

 

https://www.nytimes.com/2018/01/23/
well/live/doctors-patients-empathy-talk-relationship-communication.html

 

http://well.blogs.nytimes.com/2014/11/06/
think-like-a-doctor-out-of-sight/

 

 

 

 

 

 

 

blind patients        USA

 

https://www.npr.org/sections/health-shots/2021/05/10/
993656603/blind-patients-hope-landmark-gene-editing-experiment-will-restore-their-vision

 

 

 

 

 

 

 

blind runner        USA

 

https://www.nytimes.com/2020/12/22/
sports/blind-runner-marathon-technology.html

 

 

 

 

 

 

 

the blind        USA

 

http://www.npr.org/2014/04/19/
304896409/watch-for-the-blind-lets-you-feel-time-passing

 

http://www.npr.org/2014/01/03/
259414937/for-the-blind-connected-devices-create-a-novel-way-to-read

 

http://www.nytimes.com/2014/01/05/
opinion/sunday/why-do-we-fear-the-blind.html

 

 

 

 

 

 

 

the blind + Vplural

 

Anglonautes > Grammar > Adjectives > Adjectifs substantivés / nominalisés

 

 

 

 

 

 

 

National Federation of the Blind        USA

 

https://www.nytimes.com/2020/12/22/
sports/blind-runner-marathon-technology.html

 

 

 

 

 

 

 

blindness        USA

 

https://www.nytimes.com/2021/01/10/
obituaries/ved-mehta-celebrated-writer-for-the-new-yorker-dies-at-86.html

 

http://www.npr.org/sections/thesalt/2015/08/24/
434088387/chef-wants-diners-to-remember-her-cooking-not-her-blindness

 

http://www.nytimes.com/2009/09/27/
health/research/27eye.html

 

http://www.theguardian.com/society/2006/jun/17/
health.medicineandhealth

 

 

 

 

 

 

 

blindness and visual impairment        UK

 

https://www.theguardian.com/society/blindness

 

 

 

 

 

 

 

visually impaired        UK

 

http://www.guardian.co.uk/society/gallery/2011/apr/05/
visually-impaired-artists-scents-exhibition

 

 

 

 

 

 

 

Paralympians > visually impaired runners        USA

 

https://www.npr.org/2021/09/02/
1033630072/paralympic-proposal-visually-impaired-runner-sighted-guide-engaged-track

 

 

 

 

 

 

 

Paralympics > visually impaired skiers        USA

 

http://www.nytimes.com/2014/03/09/
sports/olympics/at-paralympics-visually-impaired-skiers-and-their-guides-form-a-team.html

 

 

 

 

 

 

 

visual disability        USA

 

I Have a Visual Disability, And I Want You To Look Me In the Eye

NYT Opinion    Video    14 July 2021

https://www.youtube.com/watch?v=TjxC-evzxdk 
 

 

 

 

 

 

 

 

blind people        UK

 

https://www.theguardian.com/lifeandstyle/gallery/2021/apr/15/
legos-bricks-for-the-blind-in-pictures

 

 

 

 

 

 

 

blind people

Internet > browser > accessibility > screen reader > Chromevox

 

https://chrome.google.com/webstore/detail/screen-reader/
kgejglhpjiefppelpmljglcjbhoiplfn?hl=fr

 

 

 

 

 

 

 

blind people

Internet > learning English with Anglonautes on Chromevox

 

English vocabulary for blind or visually impaired students

 

 

 

 

 

 

 

Cane Day        USA

 

http://www.npr.org/sections/goatsandsoda/2017/10/16/
558067629/how-white-cane-day-makes-a-difference

 

 

 

 

 

 

 

 

 

 

 

 

 

 

macular degeneration        USA

 

http://www.nytimes.com/2012/12/17/nyregion/
roger-prigent-photographer-turned-antiques-dealer-dies-at-89.html

 

 

 

 

 

 

 

ophthalmologist

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Braille

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

DNA > gene-editing technique called CRISPR > restore vision        USA

 

https://www.npr.org/sections/health-shots/2021/05/10/
993656603/blind-patients-hope-landmark-gene-editing-experiment-will-restore-their-vision

 

 

 

 

 

 

 

modify DNA > gene-editing tool > CRISPR > patients with vision loss see color again        USA

 

https://www.npr.org/sections/health-shots/2021/09/29/
1040879179/vision-loss-crispr-treatment

 

 

 

 

 

 

 

brain implant        USA

 

https://www.npr.org/2021/10/23/
1048699230/scientists-used-a-tiny-brain-implant-to-help-a-blind-teacher-see-letters-again

 

 

 

 

 

 

 

 

 

Corpus of news articles

 

Health > Disability, People with disabilities

 

Blindness, The Blind

 

 

 

Together Always,

in Darkness and in Light

 

MARCH 19, 2015

The New York Times

Nicole C. Kear

 

There is no good way to tell a new guy in your life that you’re going blind. I chose the best of lousy options: I broke the news after sex, and I packaged it right.

At 22, David was a novelist just starting his career, and I knew if I framed my plight as poetic, he’d find it irresistible, at least on a narrative level. So lying next to him in the dark, I told the story like a Gothic novel.

I started with how, three years earlier, at 19, I realized I couldn’t see the stars at night. This seemed like an innocent enough detail until it turned out to be the first symptom of an incurable degenerative retinal disease. The doctor told me I would slowly lose my eyesight over the next 10 to 15 years — first my nighttime and peripheral vision, and later, my central vision, too.

I ended on a high note: Losing my vision, I explained, was teaching me to really see. I would go blind with a bang, not a whimper, by seeing and doing more in the next decade than most people did in a lifetime.

All true, but only part of the story. The pretty part.

Our romance was still new, and I was nervous about how he would react to my disclosure. His response, though, was as grand and poetic as the story itself.

The next time we met, he wore my name on his arm. Six lowercase letters stained the skin, indelibly. As I admired the tattoo, he told me I had lit his darkness and he would light mine. No matter what came, he said, we would face it together. He was all in.

I met David during our last semester in college, where we were both English and theater majors. I liked that he was smart but not pretentious, funny but never mean. I liked his disarming sincerity, so different from my own reliance on charm and subterfuge. There was solidity to him and it made me feel safe for the first time since my diagnosis.

Where David was heavy, I was light. Where he was restrained, I was freewheeling. I made him laugh and got him to do things that scared him, like moving to Los Angeles.

He was a small-town Southern boy who had always dreamed of living in California but was never ready to take the plunge – until I took it with him.

In Los Angeles, David helped me with my acting auditions and I edited his manuscripts.

On weekends we lowered the top on his beat-up convertible and drove up the Pacific Coast Highway, our music loud. The golden hills looked like the backs of sleeping lions, we agreed. David drove for hours, one-handed, because the other hand was melded to mine.

Our life together was a grand romance, and my encroaching blindness was more blessing than curse, because it galvanized us to live with urgency. The blindness was poetic because it hadn’t happened yet.

In the abstract, blindness is epic, noble, simple. In reality, it’s a different story altogether.

In reality, it’s tedious, draining, messy. It changes you in surprising ways, some positive and some not. It’s a lot like the reality of being married.

Ten years after David had my name tattooed on his arm, our story felt less like a Gothic love story than a Raymond Carver story: doomed in the most quotidian way. Ten years in, on my 33rd birthday, I found myself sobbing alone on a stoop in Brooklyn.

I had quit acting because I could no longer navigate the dark stages and sets. We had moved back to Brooklyn, my hometown, because my driving had become untenable. We had gotten married and had a son, a long, lithe baby with bee-stung eyes.

I was elated I could discern these details, and just as overjoyed to see the round cheeks and bowed lips of my newborn daughter two years later. I watched the color of their eyes deepen into blue, and seeing these changes suffused me with gratitude. But I was suffused, too, with fear.

The year of our daughter’s birth marked the 10-year anniversary of my diagnosis, and by then I had lost enough sight to be deemed legally blind. My eyesight had closed in like the aperture on a camera, leaving me with extreme tunnel vision.

I constantly collided into people and things: monkey bars, fire hydrants, cabinet doors left ajar. I developed cataracts that made it difficult for me to fill out forms at the pediatrician’s office or, really, read anything at all.

I had been so busy making the most of my vision that I hadn’t prepared myself for losing it. I never spoke of my disease, not even to the few people who knew about it.

Concealing my vision loss was isolating and frightening. I was scared I would walk the stroller into a manhole or lose my children at the playground, scared of a future in which I could no longer see their faces.

My confidence had taken a hit, too. I gave up wearing heels because I fell in them, gave up eyeliner because I couldn’t put it on straight, gave up reading because I couldn’t make out the print. I felt like I wasn’t just losing my sight but essential parts of what made me me.

Because I had no other resources in place for support, the onus fell to David, who became my surreptitious seeing-eye guy. All of that, in addition to the typical strains of raising two young children, was taxing on a marriage.

On my 33rd birthday, David and I splurged on a sitter and planned a dinner out with friends. I spent an hour applying makeup in a magnifying mirror, only to have David observe it was a little, um, uneven. He gifted me an Anne Lamott book I couldn’t read.
Continue reading the main story Continue reading the main story
Continue reading the main story

On the walk to the restaurant, we reopened the debate about whether or not to have a third child.

I wanted to but was terrified I wouldn’t be able to take care of the baby with my failing vision. David told me he would follow my lead, but he didn’t see how we would possibly make it work. Our resources (money, time, and yes, vision) were already so limited.

Halfway to the restaurant, our discussion developed into an argument, which ended with David storming off and telling me to go to the party without him. I stopped in my tracks, crumpled onto the nearest stoop and sobbed.

I wasn’t helpless. I could find my way home. But I couldn’t go to the party without him. I couldn’t see well enough to find my friends or read the menu. I needed David and he resented it and I resented his resentment.

I remembered how I had told him I would go blind with a bang, not a whimper, and how he had promised we would always be together in darkness and in light. It seemed like we’d both been wrong.

Some minutes later, David’s big brown boots, the ones I always tripped over when he left them by the door, stepped into frame.

“You can’t just leave me,” I said, “I need you.”

“I know,” he said.

“I hate it.”

“So do I.”

Then he took my hand and said we’d figure it out.

We’re still figuring it out. The thing about slowly losing something that feels indispensable is you’re constantly adjusting to the loss. As soon as you find a comfortable balance, something shifts and you have to recalibrate.

Not long after my birthday, I called the New York State Commission for the Blind, which taught me how to use a mobility cane and adaptive technology. I got a magnifier so I didn’t need David to measure the children’s Tylenol or adjust the thermostat. I read the Anne Lamott book, easily enlarged on the e-reader David gave me for Christmas.

I reclaimed many abilities I had lost and started to make peace with what I had to let go.

A year later, David took me to dinner and said he had something to tell me. His face was hazy in the candlelight, but I could see his mouth breaking into a smile.

“I think we should have another baby,” he said.

I blinked. “But what about — — ”

David took my hand and cut me off: “We’ll figure it out.”

He spoke with the same certainty that made him tattoo my name on his arm so long ago. His faith bred faith in me. We would have another child, and it would be hard and spectacular, and we would be in it together.

Together in the Gothic romance moments and in the Raymond Carver moments. Together in moments glorious and tedious. Whatever else it was — poetic, prosaic and everything in between — our story would be ours to share.
 


Nicole C. Kear, who lives in Brooklyn, is the author of the memoir “Now I See You.”

A version of this article appears in print on March 22, 2015, on page ST6 of the New York edition with the headline: Together Always, in Darkness and in Light.

Together Always, in Darkness and in Light,
NYT,
MARCH 19, 2015,
https://www.nytimes.com/2015/03/22/
style/together-always-in-darkness-and-in-light.html 
 

 

 

 

 

 

 

 

 

Related > Anglonautes > Arts > Music > USA

 

Stevie Wonder

 

 

Arthel Lane Watson / Doc Watson    1923-2012

 

 

Ray Charles    1930-2004

 

 

 

 

 

Related > Anglonautes > Arts > Films / Movies > Documentary filmmakers > USA

 

Frederick Wiseman

 

 

 

 

 

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