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Vocapedia > Health > Disability > People with disabilities > USA

 

 

 

 

Let’s change the way we think about disability        Video        Joel Dembe | TEDxMississauga        TEDx Talks        1 August 2017

YouTube

https://www.youtube.com/watch?v=pFHOCc6Z8Ig

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

The Other Side of the Mountain’        NYT        14 May 2015

 

 

 

 

The Other Side of the Mountain’        Video        The New York Times        14 May 2015

 

After an attempt to return to Olympic glory

ended in paralysis,

Laís Souza rebuilds her life

one movement at a time.

 

Produced by: Margaret Cheatham Williams

Read the story here: http://nyti.ms/1AWWkiT

Watch more videos at: http://nytimes.com/video

 

YouTube

https://www.youtube.com/watch?v=9NYNNlrgHdI

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Good Night, Margaret        NYT        24 June 2014

 

 

 

 

Good Night, Margaret        Video        Times Documentaries | NYT        24 June 2014

 

When Margaret "Muffi" Lavigne and Chris Plum,

both with muscular dystrophy,

met at the Hospital for Special Care

in New Britain, Conn.,

their lives took an unexpected turn.

 

Produced by: Rick Gershon and Catherine Spangler

Read the story here: http://nyti.ms/1jLtyJ3

 

YouTube

https://www.youtube.com/watch?v=H5XpEIWo61k

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Life After a Heroin Overdose        NYT        13 August 2014

 

 

 

 

Life After a Heroin Overdose        Video        The New York Times        13 August 2014

 

Gail Morris cares for her son Alex,

who overdosed on heroin 13 years ago.

 

Produced by: Anne Lagamayo

Read the story here: http://nyti.ms/1r5FZbB

Watch more videos at: http://nytimes.com/video

 

YouTube

https://www.youtube.com/watch?
v=A6EdZbV2HFY&index=4&list=UUqnbDFdCpuN8CMEg0VuEBqA

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Mr. Maskin, on duty

while Ms. Mead rested and Madeleine

kept an eye on Sesame Street.

 

[ Madeleine, Ms. Mead’s 4-year-old daughter ]

 

To Keep Their Son Alive, They Sleep in Shifts. And Hope a Nurse Shows Up.

A nursing shortage — driven by the pandemic —

has made life miserable for parents with profoundly disabled children.

“What if I’m so exhausted that I make a mistake?”

NYT

June 4, 2021

https://www.nytimes.com/2021/06/04/
health/nursing-shortage-disabled-children.html

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

A group home in Bayville, N.Y.,

for people with disabilities.

 

By Wednesday, 37 of the home’s 46 residents

had tested positive for the coronavirus.

 

Photograph:

Johnny Milano for The New York Times

 

‘It’s Hit Our Front Door’:

Homes for the Disabled See a Surge of Covid-19

The New York Times

April 8, 2020

https://www.nytimes.com/2020/04/08/
nyregion/coronavirus-disabilities-group-homes.html

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 Frances Isbell, 24, who has spinal muscular atrophy,

is finishing law school at the University of Alabama.

 

A personal care assistant she gets through Medicaid

made her education possible.

 

Photograph:

Melissa Golden for The New York Times

 

For Millions, Life Without Medicaid Services Is No Option

By ABBY GOODNOUGH        NYT        JULY 1, 2017

https://www.nytimes.com/2017/07/01/
health/for-millions-life-without-medicaid-services-is-no-option.html

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Rachel and Jason embracing

in their home in Windsor, Colo., on Feb. 14.

 

Photograph: Kirsten Leah Bitzer

 

A Love Story and Twins for a Combat Veteran Amputee

By James Estrin        NYT        Jan. 3, 2017

http://lens.blogs.nytimes.com/2017/01/03/
a-love-story-and-twins-for-a-combat-veteran-amputee/

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Over two days, Frederick Brennan, who has a bone disease,

lost nearly $5,000, helped identify the thief,

and was then left to get home on his own

during a winter storm.

 

Photograph:

Todd Heisler/The New York Times

 

City Newcomer Is Let Down by a Stranger, Then the Police

NYT

Jan. 17, 2014

https://www.nytimes.com/2014/01/18/
nyregion/city-newcomer-is-let-down-by-a-stranger-then-the-police.html 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

CHALLENGES AHEAD Justen cannot crawl, speak or swallow.

 

Photograph:

Brandon Thibodeaux for The New York Times

 

In Military Care, a Pattern of Errors but Not Scrutiny

NYT

June 28, 2014

https://www.nytimes.com/2014/06/29/
us/in-military-care-a-pattern-of-errors-but-not-scrutiny.html

 

 

 

 

 

 

 

 

 

 

 

 

 

 


 

 

Andy Singer

Politicalcartoons.com

Cagle

3 August 2005

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

disability, disabilities        USA

 

http://www.nytimes.com/column/disability

 

2022

 

https://www.npr.org/sections/goatsandsoda/2022/04/12/
1091679303/a-report-on-violence-against-kids-with-disabilities-is-sobering-if-not-surprisin

 

 

 

 

2021

 

https://www.npr.org/2021/11/09/
1049814332/despite-calls-to-improve-air-travel-is-still-a-nightmare-for-many-with-disabilit

 

https://www.nytimes.com/2021/06/04/
health/nursing-shortage-disabled-children.html

 

https://www.npr.org/sections/health-shots/2021/05/20/
998725924/a-sense-of-touch-boosts-speed-accuracy-of-mind-controlled-robotic-arm

 

https://www.npr.org/2021/03/29/
981571115/education-dept-restores-debt-cancellation-for-some-borrowers-with-disabilities

 

 

 

 

2020

 

https://www.npr.org/2020/12/28/
946850500/poetry-escapes-the-beauty-bind-in-wound-from-the-mouth-of-a-wound

 

https://www.nytimes.com/2020/12/18/
us/karen-killilea-dead.html

 

https://www.npr.org/2020/09/17/
912840482/u-s-agency-urges-end-to-below-minimum-wage-for-workers-with-disabilities

 

https://www.nytimes.com/2020/07/23/
obituaries/cheryl-marie-wade-overlooked.html

 

https://www.nytimes.com/2020/07/13/
us/disability-reveal.html

 

https://www.nytimes.com/2020/04/08/
nyregion/coronavirus-disabilities-group-homes.html

 

 

 

 

2019

 

https://www.npr.org/sections/health-shots/2019/08/10/
747687155/at-high-five-camp-struggling-with-a-disability-is-the-point

 

https://www.npr.org/sections/health-shots/2019/06/12/
730669446/rural-health-financial-insecurity-plagues-many-who-live-with-disability

 

https://www.nytimes.com/2019/05/02/
lens/disability-didnt-end-their-athletic-dreams-it-started-them.html

 

https://www.npr.org/sections/health-shots/2019/04/24/
716790281/decoded-brain-signals-could-give-voiceless-people-a-way-to-talk

 

https://www.npr.org/2019/02/25/
696718872/walmart-is-eliminating-greeters-workers-with-disabilities-feel-targeted

 

 

 

 

2018

 

https://www.npr.org/2018/06/25/
623189167/states-aim-to-halt-sexual-abuse-of-people-with-intellectual-disabilities

 

https://www.nytimes.com/2018/03/28/
lens/it-was-like-my-disability-became-gift-photographer-album-ny.html

 

 

 

 

2017

 

https://www.nytimes.com/2017/10/06/
opinion/police-disabilities-safety.html

 

http://www.npr.org/sections/health-shots/2017/08/14/
543362834/poet-imagines-life-inside-a-1910-institution-that-eugenics-built

 

https://www.nytimes.com/2017/07/26/
opinion/why-is-our-existence-as-humans-still-being-denied.html

 

https://lens.blogs.nytimes.com/2017/06/21/
handicapped-but-no-longer-invisible-andres-millan/

 

http://www.npr.org/sections/health-shots/2017/06/14/
531928586/medicaid-cuts-in-wisconsin-would-undermine-training-for-adults-with-disabilities

 

https://www.nytimes.com/2017/06/14/
opinion/the-myth-of-disability-sob-stories.html

 

http://www.npr.org/sections/health-shots/2017/06/13/
531207430/people-with-unseen-disabilities-could-suffer-under-new-government-rules

 

http://www.npr.org/sections/health-shots/2017/06/06/
530025557/disability-advocates-fear-impact-of-medicaid-cuts-in-gop-health-plan

 

https://www.nytimes.com/2017/04/12/
opinion/seeing-outside-the-disability-box.html

 

https://www.nytimes.com/2017/02/08/
opinion/love-eventually.html

 

 

 

 

2016

 

http://www.npr.org/sections/goatsandsoda/2016/12/18/
504964701/how-is-the-world-treating-people-with-disabilities

 

http://www.npr.org/sections/health-shots/2016/09/26/
495477531/walking-fends-off-disability-and-its-not-too-late-to-start

 

http://www.nytimes.com/2016/09/07/
opinion/passing-my-disability-on-to-my-children.html

 

http://www.nytimes.com/2016/08/21/
opinion/sunday/becoming-disabled.html

 

 

 

 

2015

 

http://www.npr.org/sections/health-shots/2015/07/23/
424990474/why-disability-and-poverty-still-go-hand-in-hand-25-years-after-landmark-law

 

http://www.nytimes.com/2015/01/08/us/
iraq-veteran-now-a-west-point-professor-seeks-to-rein-in-disability-pay.html

 

http://www.nytimes.com/2015/01/15/
opinion/is-disability-pay-hampering-veterans-future.html

 

 

 

 

2010

 

http://www.nytimes.com/2010/12/10/
opinion/10orszag.html

 

 

 

 

 

 

 

poverty and disability        USA

 

http://www.npr.org/sections/health-shots/2015/07/23/
424990474/why-disability-and-poverty-still-go-hand-in-hand-25-years-after-landmark-law

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

USA > Americans With Disabilities Act    ADA        USA

 

Americans with Disabilities Act,

a law passed on July 26, 1990

http://www.npr.org/sections/npr-history-dept/2015/06/19/
415436391/independence-day-for-americans-with-disabilities

 

https://www.ada.gov/

 

 

https://www.npr.org/2020/07/27/
895896462/a-d-a-now

 

https://www.npr.org/2020/07/26/
895480926/the-americans-with-disabilities-act-was-signed-into-law-30-years-ago

 

https://www.npr.org/2020/07/22/
893863351/after-30-years-how-has-the-ada-helped-you

 

 

 

 

http://www.nytimes.com/roomfordebate/2015/07/26/
the-americans-with-disabilities-act-25-years-later

 

https://www.npr.org/2015/07/24/
423230927/-a-gift-to-the-non-disabled-at-25-the-ada-improves-access-for-all

 

https://www.npr.org/sections/goatsandsoda/2015/07/24/
425607389/how-a-law-to-protect-disabled-americans-became-imitated-around-the-world

 

https://www.npr.org/sections/health-shots/2015/07/23/
424990474/why-disability-and-poverty-still-go-hand-in-hand-25-years-after-landmark-law

 

http://www.npr.org/sections/npr-history-dept/2015/06/19/
415436391/independence-day-for-americans-with-disabilities

 

 

 

 

http://www.nytimes.com/2013/08/06/
opinion/lawyers-of-sound-mind.html

 

 

 

 

 

 

 

disability insurance        USA

 

http://www.nytimes.com/2014/09/13/
your-money/life-and-disability-insurance/flat-on-your-back-
not-a-good-time-to-consider-long-term-disability-insurance.html

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

disability rights activists        USA

 

https://www.nytimes.com/2021/07/17/
health/erin-gilmer-dead.html

 

http://www.npr.org/sections/health-shots/2017/07/10/
536052787/game-of-thrones-finds-fans-among-disability-rights-activists-too

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Erin Gilmer in 2012.

She was a consultant

to hospitals, universities and pharmaceutical companies

even while struggling with a number of debilitating conditions.

 

Photograph: Lightroom Mobile

 

Erin Gilmer, Disability Rights Activist, Dies at 38

She fought for a more compassionate health care system,

bringing an extensive knowledge of policy

and even more extensive firsthand experience as a patient.

NYT

July 17, 2021

https://www.nytimes.com/2021/07/17/
health/erin-gilmer-dead.html

 

 

 

 

 

 

 

disability rights activists > Erin Michelle Gilmer    1982-2021    USA

 

https://www.nytimes.com/2021/07/17/
health/erin-gilmer-dead.html

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

disabled        USA

 

https://www.propublica.org/article/
loan-forgiveness-for-disabled-borrowers-was-10-years-in-the-making - Sept. 8, 2021

 

https://www.nytimes.com/2021/06/04/
health/nursing-shortage-disabled-children.html

 

 

 

 

https://www.npr.org/2020/12/28/
946850500/poetry-escapes-the-beauty-bind-in-wound-from-the-mouth-of-a-wound

 

https://www.nytimes.com/2020/07/26/
opinion/Americans-with-disabilities-act.html

 

 

 

 

https://www.nytimes.com/2017/05/03/
opinion/my-medicaid-my-life.html

 

https://www.nytimes.com/2017/02/15/
opinion/disabled-shunned-and-silenced-in-trumps-america.html

 

 

 

 

http://www.npr.org/2016/09/04/
492430780/disabled-and-fighting-for-the-right-to-vote

 

http://www.nytimes.com/2016/08/21/
opinion/sunday/becoming-disabled.html

 

http://www.npr.org/sections/health-shots/2016/07/13/
485261651/workplaces-can-be-particularly-stressful-for-disabled-americans-poll-finds

 

http://www.npr.org/sections/13.7/2016/02/25/
468073722/disabled-just-saytheword

 

 

 

 

http://www.nytimes.com/2015/11/02/
upshot/fake-cover-letters-expose-discrimination-against-disabled.html

 

 

 

 

 

 

 

disabled people        UK / USA

 

https://www.theguardian.com/news/audio/2019/jun/11/
cruel-state-the-impact-of-austerity-on-disabled-people

 

https://www.theguardian.com/commentisfree/video/2016/sep/07/
its-time-to-stop-calling-disabled-people-inspirational-video

 

http://www.nytimes.com/2011/11/06/nyregion/
at-state-homes-simple-tasks-and-fatal-results.html

 

https://www.theguardian.com/society/2010/jul/21/
disabled-people-open-jobs-market

 

 

 

 

 

 

 

disabled rowers        USA

 

http://www.npr.org/2015/10/17/
449388076/top-regatta-now-includes-more-but-not-all-disabled-rowers

 

 

 

 

 

 

 

disabled artists        USA

 

http://www.nytimes.com/2015/02/06/
arts/ike-schambelan-director-who-brought-disabled-artists-
to-the-stage-dies-at-75.html

 

 

 

 

 

 

 

disabled dancer        USA

 

https://www.nytimes.com/2020/11/10/
arts/david-toole-disabled-dancer-with-grace-in-his-hands-dies-at-56.html

 

 

 

 

 

 

 

profoundly disabled children        USA

 

https://www.nytimes.com/2021/06/04/
health/nursing-shortage-disabled-children.html

 

 

 

 

 

 

 

people with disabilities        USA

 

2022

 

https://www.nytimes.com/2022/05/17/
opinion/my-disability-roadmap-adulthood.html

 

 

 

 

2021

 

https://www.npr.org/2021/07/31/
1020746037/disability-access-representation-ada

 

https://www.npr.org/2021/03/29/
981571115/education-dept-restores-debt-cancellation-for-some-borrowers-with-disabilities

 

https://www.npr.org/2021/01/23/
959613351/parents-with-disabilities-face-extra-hurdles-with-kids-remote-schooling

 

 

 

 

2020

 

https://www.npr.org/2020/07/31/
896882268/one-mans-covid-19-death-raises-the-worst-fears-of-many-people-with-disabilities

 

https://www.npr.org/sections/health-shots/2020/06/16/
875944357/people-with-disabilities-find-the-coronavirus-has-cut-them-off-from-their-caregi

 

https://www.nytimes.com/2020/04/08/
nyregion/coronavirus-disabilities-group-homes.html

 

 

 

 

2018

 

https://www.npr.org/2018/06/29/
620337603/teaching-parents-of-kids-with-disabilities-to-fight-back

 

 

 

 

2017

 

https://www.nytimes.com/2017/10/06/
opinion/police-disabilities-safety.html

 

http://www.npr.org/sections/health-shots/2017/02/22/
516668777/nick-dupree-fought-to-live-like-anyone-else

 

 

 

 

2016

 

http://www.npr.org/sections/goatsandsoda/2016/12/18/
504964701/how-is-the-world-treating-people-with-disabilities

 

http://www.npr.org/2016/10/24/
499177544/disabled-voters-fight-for-more-accessible-polling-places

 

http://www.npr.org/sections/health-shots/2016/10/24/
498558056/getting-dental-care-can-be-a-challenge-for-people-with-disabilities

 

 

 

 

2015

 

http://www.npr.org/sections/health-shots/2015/10/22/
450573400/affordable-virtual-reality-opens-new-worlds-for-people-with-disabilities

 

 

 

 

 

 

 

people with developmental disabilities        USA

 

https://www.propublica.org/article/
people-with-developmental-disabilities-were-promised-help-
instead-they-face-delays-and-denials - Nov. 5, 2020

 

 

 

 

 

 

 

workers with disabilities        USA

 

https://www.npr.org/2020/09/17/
912840482/u-s-agency-urges-end-to-below-minimum-wage-for-workers-with-disabilities

 

 

 

 

 

 

 

developmental disabilities        USA

 

http://www.npr.org/sections/thesalt/2017/01/14/
508602730/for-people-with-developmental-disabilities-food-work-means-more-self-reliance

 

 

 

 

 

 

 

people with 'invisible disabilities'        USA

 

http://www.npr.org/2015/03/08/
391517412/people-with-invisible-disabilities-fight-for-understanding

 

 

 

 

 

 

parents with disabilities        USA

 

https://www.npr.org/2021/01/23/
959613351/parents-with-disabilities-face-extra-hurdles-with-kids-remote-schooling

 

 

 

 

 

 

 

kids with disabilities        USA

 

https://www.npr.org/sections/goatsandsoda/2022/04/12/
1091679303/a-report-on-violence-against-kids-with-disabilities-is-sobering-if-not-surprisin

 

https://www.npr.org/2018/06/29/
620337603/teaching-parents-of-kids-with-disabilities-to-fight-back

 

 

 

 

 

 

 

at a school for kids with disabilities        USA

 

http://www.npr.org/sections/ed/2016/03/01/
468135427/at-a-school-for-kids-with-disabilities-the-ski-team-hits-the-slopes

 

 

 

 

 

 

 

the disabled        USA

 

https://www.nytimes.com/2020/07/31/
obituaries/roland-johnson-overlooked.html

 

https://www.npr.org/2020/07/22/
894148776/disaster-relief-for-the-elderly-and-disabled-is-already-hard-now-add-a-pandemic

 

https://www.nytimes.com/2020/03/27/
nyregion/queens-horses-coronavirus.html

 

 

 

 

http://www.nytimes.com/2014/04/09/us/
developmentally-disabled-get-more-workplace-protections.html

 

http://www.nytimes.com/2013/11/27/
sports/baseball/lou-brissie-war-hero-and-baseball-pitcher-dies-at-89.html

 

http://www.nytimes.com/2010/10/21/us/
21miller.html

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Karen Killilea as a young woman

at her family’s home in Larchmont, N.Y.,

with her dog, Perry.

 

She conducted obedience training for dogs

and had a special affection for Newfoundlands.

 

Photograph:

Edward Lettau, via Killilea family

 

Karen Killilea, 80, Dies; Turned Disability Into Triumph

She refused to be limited by her cerebral palsy.

Her story was the subject of two widely read books

and became an inspiration to many

NYT

Dec. 18, 2020

https://www.nytimes.com/2020/12/18/
us/karen-killilea-dead.html

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

cerebral palsy        USA

 

https://www.nytimes.com/2020/12/18/
us/karen-killilea-dead.html

 

 

 

 

 

 

 

a form of cerebral palsy

known as right hemiplegia        USA

 

https://www.nytimes.com/2017/02/08/
opinion/love-eventually.html

 

 

 

 

 

 

 

 

 

 

 

 

 

 

people with disabilities > group homes / homes for the disabled        USA

 

https://www.nytimes.com/2020/04/08/
nyregion/coronavirus-disabilities-group-homes.html

 

 

 

 

 

 

 

Margaret Lavigne    1971-2016        USA

 

advocate for people with disabilities

 

http://www.nytimes.com/2016/03/09/nyregion/
margaret-lavigne-advocate-for-people-with-disabilities-dies-at-44.html

 

http://www.nytimes.com/video/health/
100000002951693/good-night-margaret.html -  Jun. 23, 2014

 

 

 

 

 

 

 

Subminimum Wages For The Disabled:

Godsend Or Exploitation?        USA

 

http://www.npr.org/2014/04/23/
305854409/subminimum-wages-for-the-disabled-godsend-or-exploitation 

 

 

 

 

 

 

 

the Severely Disabled        USA

 

http://www.nytimes.com/2010/06/20/
education/20donovan.html

 

 

 

 

 

 

James Scott Brady    USA    1940-2014

 

White House press secretary

who was wounded

in an assassination attempt

on President Ronald Reagan

and then became

a symbol of the fight for gun control,

championing tighter regulations

from his wheelchair

http://www.nytimes.com/2014/08/05/us/
politics/james-s-brady-symbol-of-fight-for-gun-control-dies-at-73.html

 

http://www.nytimes.com/2014/08/05/us/
politics/james-s-brady-symbol-of-fight-for-gun-control-dies-at-73.html

 

 

 

 

 

 

 

Terence John Moakley    USA    1944-2014

 

persistent advocate for the disabled

who fought

for wheelchair users

to have access

to taxicabs and transit systems

 

http://www.nytimes.com/2014/09/21/nyregion/
terence-moakley-advocate-for-disabled-dies-at-69.html

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Together We Stand        NYT        21 September 2014

 

 

 

 

Together We Stand        Video        Modern Love | The New York Times        21 September 2014

 

After two failed marriages,

Anna March finally found love,

security and happiness — despite all appearances —

with her “disabled” husband, Adam.

 

Produced by: Scott Wenner

Read the story here: http://nyti.ms/1p3VOZZ

Watch more videos at: http://nytimes.com/video

 

YouTube

https://www.youtube.com/watch?v=1BM2cVGB85I&list=UUqnbDFdCpuN8CMEg0VuEBqA

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

be paralyzed

by amyotrophic lateral sclerosis, or A.L.S.        USA

 

http://www.nytimes.com/2014/08/31/
business/hal-finney-cryptographer-and-bitcoin-pioneer-dies-at-58.html

 

 

 

 

 

 

 

man with paralysis        USA

 

https://www.npr.org/sections/health-shots/2021/07/14/
1016028911/experimental-brain-implant-lets-man-with-paralysis-turn-his-thoughts-into-words

 

 

 

 

 

 

 

have a severe neuromuscular disease        USA

 

http://www.npr.org/sections/health-shots/2017/02/22/
516668777/nick-dupree-fought-to-live-like-anyone-else

 

 

 

 

 

 

 

 

 

 

 

 

 

 

14 Years Old, Losing Muscle Every Day        NYT        23 June 2017

 

 

 

 

14 Years Old, Losing Muscle Every Day        Video        The New York Times        23 June 2017

 

Nicolas is 14 and has Duchenne muscular dystrophy,

which is robbing him of his muscles and his life.

 

A new and expensive drug may help,

but can he get it?

 

YouTube

https://www.youtube.com/watch?v=WymhaB_xA4k

 

Related

https://www.nytimes.com/video/health/
100000005099028/duchenne-muscular-dystrophy-exondys.html

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Muscular dystrophy        USA

 

Muscular dystrophy

is a group of inherited disorders

that involve muscle weakness

and loss of muscle tissue,

which get worse over time.

 

http://www.nytimes.com/health/guides/disease/
muscular-dystrophy/overview.html - broken URL

 

 

 

 

 

 

 

genetic disorder >  spinal muscular atrophy        USA

 

https://www.nytimes.com/2017/07/01/
health/for-millions-life-without-medicaid-services-is-no-option.html

 

 

 

 

 

 

 

Duchenne muscular dystrophy - muscle-wasting disease        USA

 

https://www.nytimes.com/video/health/
100000005099028/duchenne-muscular-dystrophy-exondys.html - June 22, 2017

 

http://www.npr.org/sections/health-shots/2017/02/14/
515046376/duchenne-drug-delayed-after-outrage-over-price

 

 

 

 

http://www.npr.org/sections/health-shots/2016/09/24/
495174472/controversy-continues-over-muscular-dystrophy-drug-despite-fda-approval

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

paralysis        USA

 

https://www.npr.org/sections/health-shots/2021/
05/20/998725924/a-sense-of-touch-boosts-speed-accuracy-of-mind-controlled-robotic-arm

 

https://www.npr.org/sections/health-shots/2021/05/12/
996141182/paralyzed-man-communicates-by-imagining-handwriting

 

https://www.nytimes.com/2017/01/11/
opinion/my-life-with-paralysis-its-a-workout.html

 

 

 

 

 

 

 

Man Who Is Paralyzed Communicates By Imagining Handwriting

NPR    May 12, 2021

 

https://www.npr.org/sections/health-shots/2021/05/12/
996141182/paralyzed-man-communicates-by-imagining-handwriting

 

 

 

 

 

 

 

Paralyzed Man Uses Thoughts

To Control His Own Arm And Hand        NPR        March 28, 2017

 

http://www.npr.org/sections/health-shots/2017/03/28/
521665654/paralyzed-man-uses-thoughts-to-control-his-own-arm-and-hand

 

 

 

 

 

 

 

Technology Helps A Paralyzed Man

Transform Thought Into Movement        USA        April 13, 2016

 

http://www.npr.org/sections/health-shots/2016/04/13/
473821367/technology-helps-a-paralyzed-man-transform-thought-into-movement

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

amputation        USA

 

https://www.nytimes.com/interactive/2020/09/10/
magazine/amputation-implanted-prosthetic-limb-osseointegration.html

 

 

 

 

 

 

 

amputee        USA

 

https://www.npr.org/2022/05/03/
1095995698/guinness-world-record-104-marathons-amputee

 

http://lens.blogs.nytimes.com/2017/01/03/
a-love-story-and-twins-for-a-combat-veteran-amputee/

 

 

 

 

 

 

 

quadruple amputee        USA

 

https://www.nytimes.com/2017/02/03/world/europe/
alex-lewis-quadruple-amputee.html

 

 

 

 

 

 

 

 

 

 

 

 

 

 

quadriplegic        USA

 

https://www.npr.org/2020/07/31/
896882268/one-mans-covid-19-death-raises-the-worst-fears-of-many-people-with-disabilities

 

https://www.nytimes.com/2017/10/28/
us/las-vegas-injured.html

 

http://www.npr.org/2014/04/11/
301574558/one-man-becomes-anothers-hands-feet-and-family

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

wheelchair        USA

 

https://www.nytimes.com/2020/07/23/
obituaries/cheryl-marie-wade-overlooked.html

 

https://www.npr.org/2020/01/17/
797355136/amtrak-asks-two-people-in-wheelchairs-to-pay-25-000-for-a-ride

 

 

 

 

https://www.nytimes.com/2017/09/27/
opinion/online-dating-disability.html

 

http://www.npr.org/sections/health-shots/2017/08/14/
543362834/poet-imagines-life-inside-a-1910-institution-that-eugenics-built

 

http://www.npr.org/sections/goatsandsoda/2017/07/08/
533118638/mexico-and-u-s-team-up-to-create-low-cost-wheelchairs

 

https://www.nytimes.com/2017/05/17/
opinion/if-youre-in-a-wheelchair-segregation-lives.html

 

https://www.nytimes.com/2017/03/29/
opinion/new-york-has-a-great-subway-if-youre-not-in-a-wheelchair.html

 

http://www.npr.org/sections/goatsandsoda/2017/03/31/
521965573/shot-by-her-boyfriend-and-now-in-a-wheelchair-she-found-a-new-me

 

http://www.npr.org/sections/health-shots/2017/02/22/
516668777/nick-dupree-fought-to-live-like-anyone-else

 

 

 

 

http://www.npr.org/sections/alltechconsidered/2016/05/19/
477023614/for-wheelchair-users-a-robodesk-for-electronic-devices

 

http://www.nytimes.com/2016/03/09/nyregion/
margaret-lavigne-advocate-for-people-with-disabilities-dies-at-44.html

 

 

 

 

 

 

 

in a wheelchair        USA

 

https://www.nytimes.com/2020/07/23/
obituaries/cheryl-marie-wade-overlooked.html

 

 

 

 

https://www.nytimes.com/2017/05/17/
opinion/if-youre-in-a-wheelchair-segregation-lives.html

 

https://www.nytimes.com/2017/03/29/
opinion/new-york-has-a-great-subway-if-youre-not-in-a-wheelchair.html

 

http://www.npr.org/sections/goatsandsoda/2017/03/31/
521965573/shot-by-her-boyfriend-and-now-in-a-wheelchair-she-found-a-new-me

 

 

 

 

http://www.nytimes.com/2014/05/07/
arts/subway-accident-is-fodder-for-liza-dyes-comedy-routine.html

 

 

 

 

 

 

 

people who use wheelchairs        USA

 

https://www.npr.org/2020/01/17/
797355136/amtrak-asks-two-people-in-wheelchairs-to-pay-25-000-for-a-ride

 

 

 

 

 

 

 

wheelchair basketball        USA

 

http://www.nytimes.com/2015/02/20/
sports/basketball/rollin-knicks-contend-
in-rough-and-tumble-wheelchair-basketball.html

 

 

 

 

 

 

 

mobility scooter        UK

 

https://www.theguardian.com/books/2021/feb/27/
a-still-life-by-josie-george-review-memoir-of-a-mystery-illness

 

 

 

 

 

 

 

on crutches        UK

 

https://www.theguardian.com/books/2021/feb/27/
a-still-life-by-josie-george-review-memoir-of-a-mystery-illness

 

 

 

 

 

 

 

 

 

 

 

 

 

 

multiple sclerosis        USA

 

http://www.npr.org/sections/thetorch/2016/09/01/
492223434/a-paralympian-cyclist-gears-up-for-rio

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

exoskeletons        USA

 

https://www.npr.org/2019/05/07/
716412296/how-mind-controlled-robot-suits-could-enhance-our-limbs

 

 

 

 

https://www.npr.org/sections/money/2015/06/11/
413406156/a-suit-that-turns-a-person-into-a-robot-sort-of

 

https://www.theatlantic.com/technology/archive/2015/08/
exoskeletons-disability-assistive-technology/400667/

 

 

 

 

https://www.npr.org/2014/06/08/
320077425/scientist-touts-exoskeleton-that-could-offer-a-chance-to-walk-again

 

https://www.npr.org/2014/04/21/
305545008/robotic-exoskeleton-helps-get-vets-back-on-their-feet

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

have dementia and sensory aphasia,

which impairs her ability to understand and communicate        USA

 

https://www.nytimes.com/2021/04/27/
us/loveland-police-video-karen-garner.html

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

disability benefits        USA

 

http://www.npr.org/sections/health-shots/2017/06/13/
531207430/people-with-unseen-disabilities-could-suffer-under-new-government-rules

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

home-care nurses        USA

 

https://www.nytimes.com/2021/06/04/
health/nursing-shortage-disabled-children.html

 

 

 

 

 

 

 

 

 

Corpus of news articles

 

Health > Disability >

 

People with disabilities > USA

 

 

 

Making Disability Work

 

December 9, 2010

The New York Times

By PETER ORSZAG

 

I will begin a new job
for Citigroup in January,
so this is my last article
as a contributing columnist for The Times.

I hope to see you again from time to time
on the Op-Ed page.



One of the gravest dangers posed by the weak economy is that the unemployed will become discouraged and give up looking for work, perhaps permanently as their skills atrophy. This would be harmful not only to the workers and their families, but also to the economy as a whole, as those people would no longer contribute to economic growth. The longer the labor market remains sluggish, the more pronounced this risk becomes.

Unfortunately, at this point more than six million people have been unemployed for six months or longer. More than one million have already given up looking for work because they believe no job is available. And a drastic rise in applications for disability insurance suggests we may be headed for more long-lasting trouble. The number of disability applications has reached more than 750,000 a quarter, according to the Social Security Administration, an increase of more than 50 percent from four years ago.

The disability insurance program provides crucial support for people who can no longer work because of a disability. But once someone begins receiving benefits, the likelihood that he will re-enter the work force is almost nonexistent; recipients become permanently dependent on the program.

The result is not only lost economic productivity, but also a fiscal burden for the federal government: disability benefits now cost more than $120 billion a year, and Medicare benefits for those on disability add $70 billion.

The spike in disability insurance applications (and awards) does not reflect a less healthy population. The fraction of working-age adults who report a disability, about one in 10, has remained roughly constant for the past 20 years. (Indeed, it would be surprising if the number of workers with disabilities had risen by 50 percent over the past four years.) Rather, the weak labor market has driven more people to apply for disability benefits that they qualify for but wouldn’t need if they could find work.

When Congress created the disability insurance program in 1956, it required that recipients be unable to “engage in substantial gainful activity in the U.S. economy.” In other words, they had to be unable to work. That was sensible at the time, when more jobs involved physical labor and technologies to assist people with disabilities were not widely available.

Today, however, many people with disabilities are able to engage in some form of work — even if they can’t admit that and still keep their insurance benefits. Cutting off access to the workplace in this way is both unfortunate and unnecessary — and reinforces the threat that the current downturn could cause a long-term reduction in the share of people who work.

So what should be done?

First, macroeconomic policy. We need more stimulus immediately, and more deficit reduction enacted now to take effect in two or three years. The plan just proposed by the White House in a compromise with Congressional Republicans is encouraging in that it includes a new payroll tax holiday, a helpful stimulus. It does not reduce future deficits, but at least it avoids making the Bush tax cuts permanent, reserving the flexibility to address medium-term deficits down the road.

Even if this plan goes ahead, however, the unemployment rate is likely to remain high for some time. For it to fall by even one percentage point (from 9.5 percent to 8.5 percent) the economy needs to grow by about 4.5 percent a year.

Second, unemployment insurance should be extended, as President Obama’s compromise plan also would do. Unemployment benefits are a form of stimulus: they spur spending and thereby help keep the economy afloat. Just as important, unemployment benefits keep many people from falling back on disability insurance — and unlike disability insurance, which effectively prohibits beneficiaries from seeking work, unemployment insurance requires recipients to keep looking for a job and thus remain connected to the work force.

Finally, the disability insurance program itself must be reformed. Program administrators understand the need to encourage beneficiaries to return to work, and they have experimented with various incentives. Such initiatives have generally been ineffective, though, because they reach beneficiaries too late, after they have already become dependent on the program and lost their attachment to the work force.

A better approach has been suggested by David Autor of M.I.T. and Mark Duggan of the University of Maryland. In a paper released last week from the Center for American Progress and the Hamilton Project, these economists argue that employers should be required to offer their workers private disability insurance. Such coverage would provide people who have a work-limiting disability with vocational assistance, workplace accommodation and limited wage replacement. All of these benefits would kick in within 90 days of the onset of disability, to avoid the problems with delayed assistance that have plagued efforts to reform public disability insurance. Private employers would have an incentive to prevent their workers from having to file disability applications, because their insurance premiums would rise in response to higher disability rates.

Disabled workers could remain on this privately financed insurance for two years, and then be eligible for the existing public program. The goal would be to minimize long-term dependency, and re-orient the federal disability insurance program toward assisting those who are truly unable to work.

One concern is that this approach would burden firms with additional human resource costs when we need to encourage hiring. But the costs are projected to be modest — roughly $250 per worker per year. And if they help to reduce the future payroll tax increases that would be needed to finance rapid growth in disability benefits, the pressure on overall labor costs would be even smaller.

Another concern is that private insurance firms would need to be given substantially expanded responsibility for evaluating workers’ disabilities. Mr. Autor and Mr. Duggan propose to mitigate this potential problem by suggesting that workers be allowed to appeal any such evaluations to state government agencies.

The Netherlands has adopted a program like this, and the results so far are promising. In 1994, the Dutch government required all firms to finance the first six weeks of disability benefits. That period was later extended to one year and then to two years. In 2002, the program was broadened to require back-to-work plans, developed cooperatively by the disabled worker, his employer and a consulting doctor. The number of disability recipients in the Netherlands has since declined significantly.

None of these policy changes would be easy. But failing to act would result in millions of Americans needlessly dropping out of the work force. In our precarious economy, neither progressives nor conservatives should be willing to watch passively as the disability insurance rolls grow, and beneficiaries are locked out of the labor market.

 

Peter Orszag, the director of the White House Office

of Management and Budget from 2009 to July 2010,

is a distinguished visiting fellow

at the Council on Foreign Relations.

Making Disability Work,
NYT,
9.11.2010,
http://www.nytimes.com/2010/12/10/
opinion/10orszag.html

 

 

 

 

 

'Mate crime' fears

for people with learning disabilities

Learning disabled people living in the community
are increasingly finding themselves the victims
of so-called mate crime

 

Guardian.co.uk
Tuesday 14 September 2010
16.15 BST
This article was published on guardian.co.uk
at 16.15 BST on Tuesday 14 September 2010.
A version appeared on p3 of the SocietyGuardian section
of the Guardian on Wednesday 15 September 2010.
Rachel Williams

 

Steven Hoskin had strong feelings about his killers. They had abused, exploited and humiliated him over a year, taking his money, treating him as their slave and making him wear his own dog's collar and lead. Eventually, having forced him to swallow 70 painkillers, they took him to the top of a railway viaduct and made him hang from the railings as one member of the gang, a girl aged 16, stamped on his hands until he fell 30 metres to his death.

Yet these were the people the 38-year-old, who had severe learning disabilities, had boasted excitedly of counting as friends. "He thought they were the cat's whiskers," says Morley Richards, who had known Hoskin before he met the group. "He would say, 'They're my mates, I've got my own mates now.'"

Hoskin's case is extreme, but the phenomenon of learning disabled people being groomed by those who pretend to be their friends before being exploited by them financially, physically or sexually – "mate crime", as it is sometimes known – is far from rare, experts say, and appears to be on the increase. As more individuals are given the chance to live independently, the unwelcome side effect is that they are more likely to fall prey to criminals. Hoskin was a case in point: he had left the tiny Cornish village of Maudlin, near Bodmin, where he had grown up, and was thrilled to have his own bedsit in the market town of St Austell, where he made his new "friends".

The Association for Real Change (ARC) has been researching mate crime for the past year in Calderdale, west Yorkshire, and in north Devon, after a groundswell of concern among its members who are service providers for people with learning disabilities. Examples it has been told about range from perpetrators routinely going to a victim's house and clearing their cupboards of food and alcohol before leaving them to clear up the mess, to instances of people being persuaded to part with their benefits.

Women can be sexually exploited by men who claim to be their boyfriend, says David Grundy, who runs the Calderdale project. "They might be told, 'We're a couple and we haven't got any money – if you sleep with my mate he'll pay us.'" In other cases, someone with learning disabilities may be asked to look after a package that contains drugs and end up being beaten up as a result, or go shoplifting with their new-found friends carrying a weapon, only to get caught by police.

The victim may not realise that what is happening is wrong. "There can be a feeling of, 'He's my friend, that's what friends do,'" says Grundy. "People with learning disabilities have fewer friends. For some, any friends is better than no friends, even if they're spending all your money.

"It involves a lot of issues [around] self-belief and self-worth: thinking it's all right for people to walk all over them all the time, because that's what's happened to them the whole of their lives."

Rod Landman, from the north Devon project, likens the situation to domestic violence. "The primacy of the relationship can be more important than what's happening inside it. People are prepared to put up with all sorts of crap to keep a relationship that may be the only one they have apart from with someone who's being paid to be with them." As a result, victims shy away from reporting such hate crime incidents to the police, or indeed anyone. Every service provider that Landman talks to will tell him of cases, he says, but no one with learning disabilities will do the same.

Some families and frontline social care staff are still unaware of what constitutes a disability hate crime and what to do when one happens, says Grundy. Abusive relationships may get flagged up to adult safeguarding teams, but their primary aim is to keep the individual safe by removing them from the situation, rather than report those committing the crimes. This means that perpetrators remain free to target others.

As cuts lead to the closure of day centres and potentially less support for vulnerable people, there are fears that the situation could get worse. Gavin Harding, vice-chair of the National Forum for People with Learning Disabilities, remembers the shock and anger he felt five years ago when he realised that someone he believed to be a friend had taken his cheque book and, together with another man, forged a cheque for £500.

"It was the fact they took advantage of me," he says. "It felt awful. You feel you can't trust people after that."

 

• Information on ARC's Safety Net project is at arcsafety.net

'Mate crime' fears for people with learning disabilities,
G,
14.9.2010,
http://www.guardian.co.uk/society/2010/sep/14/
learning-disabilities-mate-crime

 

 

 

 

 

 

 

 

 

Related > Anglonautes > Vocapedia

 

disability

 

 

sports > paralympics

 

 

school > special education / needs > USA

 

 

body,

health, medicine, drugs,

viruses, bacteria,

diseases / illnesses,

hygiene, sanitation,

health care / insurance

 

 

genetics

 

 

mental health / psychology

 

 

health,

contraception, abortion,

pregnancy, birth, life,

life expectancy,

getting older / aging,

death

 

 

USA > prescription opioid painkillers

 

 

lifestyle / health > exercise,

smoking / tobacco, vaping,

drinking / alcohol,

diet, obesity

 

 

 

 

 

Related > Anglonautes > Science

 

scientists > UK > Stephen Hawking    1942-2018

 

 

 

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