Vocapedia > Health > Genetics > Sickle cell disease

Mariya Haruna holding a photo of her daughters

Zaliha, left, who is 20 and now studying to be a nurse,

and Aisha, who died of sickle cell in 2008 at age 6.

They Lost Three Daughters to Sickle Cell.

Can They Save a Fourth?

About 150,000 babies are born each year in Nigeria

with sickle cell, a deadly disease.

Tens of thousands of them die annually

before their fifth birthdays.

NYT

December 21, 2021

https://www.nytimes.com/2021/12/21/
health/sickle-cell-nigeria.html

Helen Obando awaiting surgery

at the Dana-Farber/Boston Children’s Cancer

and Blood Disorders Center last month.

Photograph: Hilary Swift

The New York Times

At 16, She’s a Pioneer in the Fight to Cure Sickle Cell Disease

Helen Obando is the youngest person ever to get a gene therapy

that scientists hope will cure the disease,

which afflicts 100,000 Americans.

NYT

Jan. 11, 2020

https://www.nytimes.com/2020/01/11/
health/sickle-cell-disease-cure.html

The girls receiving a blood transfusion in September.

They had been feeling tired from lack of red blood cells

and were in such pain that they were admitted to the hospital.

These Sisters With Sickle Cell Had Devastating, and Preventable, Strokes

Kyra and Kami never got a simple test that could have protected them.

Their story exemplifies the failure to care for people with the disease,

most of whom are Black.

NYT

Published May 23, 2021

Updated May 24, 2021, 3:38 a.m. ET

https://www.nytimes.com/2021/05/23/
health/sickle-cell-black-children.html

sicle cell disease        UK

https://www.theguardian.com/society/
sickle-cell-disease

https://www.theguardian.com/news/audio/2024/apr/08/
whats-the-worst-that-could-happen-
love-in-the-sickle-cell-capital-of-the-world-
podcast - Guardian podcast

sickle cell disease        USA

Sickle cell disease

is an inherited disorder

that causes

some red blood cells

to bend into a crescent shape.

The misshapen,

inflexible cells

clog the blood vessels,

preventing blood

from circulating oxygen properly,

which can cause chronic pain,

organ failure and stroke.

http://www.npr.org/sections/health-shots/2017/11/04/
561654823/sickle-cell-patients-endure-discrimination-poor-care-and-shortened-lives

2024

https://www.nytimes.com/2024/05/06/
health/sickle-cell-cure-first.html

2023

https://www.npr.org/sections/health-shots/2023/12/25/
1219342935/sickle-cell-patients-journey-
leads-to-landmark-approval-of-gene-editing-treatmen

https://www.npr.org/sections/health-shots/2023/12/08/
1217123089/fda-approves-first-gene-editing-treatments-for-human-illness

https://www.npr.org/sections/health-shots/2023/10/31/
1208041252/a-landmark-gene-editing-treatment-for-sickle-cell-disease-
moves-closer-to-realit

https://www.nytimes.com/2023/10/30/
opinion/sickle-cell-gene-therapy-crispr.html

2021

https://www.npr.org/sections/health-shots/2021/12/31/
1067400512/first-sickle-cell-patient-treated-with-crispr-gene-editing-
still-thriving

https://www.nytimes.com/2021/12/21/
health/sickle-cell-nigeria.html

https://www.nytimes.com/2021/09/14/
health/sickle-cell-cure.html

https://www.nytimes.com/2021/05/30/
us/sickle-cell-black-women.html

https://www.nytimes.com/2021/05/23/
health/sickle-cell-black-children.html

2020

https://www.npr.org/sections/health-shots/2020/06/23/
877543610/a-year-in-1st-patient-to-get-gene-editing-for-sickle-cell-disease-is-thriving

https://www.nytimes.com/2020/01/11/
health/sickle-cell-disease-cure.html

https://www.npr.org/sections/health-shots/2020/01/02/
782654754/effort-to-control-opioids-in-an-er-leaves-some-sickle-cell-patients-in-pain

2019

https://www.npr.org/2019/11/01/
775332170/a-revolutionary-experiment-to-edit-human-genes

https://www.npr.org/sections/health-shots/2019/07/29/
744826505/sickle-cell-patient-reveals-
why-she-is-volunteering-for-landmark-gene-editing-st

2017

http://www.npr.org/sections/health-shots/2017/11/04/
561654823/sickle-cell-patients-endure-discrimination-poor-care-and-shortened-lives

https://www.washingtonpost.com/news/morning-mix/wp/2017/06/21/
how-rap-revolutionary-prodigy-dead-at-42-overcame-the-pain-of-sickle-cell-anemia/

2010

http://www.nytimes.com/2010/04/15/us/
15ranney.html

sickle cell crises        USA

https://www.nytimes.com/2023/10/30/
opinion/sickle-cell-gene-therapy-crispr.html

inherit        USA

https://www.nytimes.com/2021/05/23/
health/sickle-cell-black-children.html

pain        USA

https://www.nytimes.com/2021/05/30/
us/sickle-cell-black-women.html

searing pain        USA

https://www.nytimes.com/2023/10/30/
opinion/sickle-cell-gene-therapy-crispr.html

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